I am a mum to two gorgeous girls. One of whom has a few issues, she is 8 now. The other is profoundly deaf and has a rare metabolic disorder, Glycogen Storage Disease. I started this Blog initially to record progress in Mary. As that was slow I forgot about it for a while. Now I am writing for me to express my frustrations and joys at being the Mum to a disabled child. I hope you enjoy reading.